Preparing for adulthood and Life Limiting Illness
During your time with the Children`s Community Nursing Service you may have an illness where you have been ill for a long time. We want to help you know about the differences you might experience in healthcare as you grow up. We will help you to think about what adult services you might need.
The Children's Community Nurses can support you and your family with information.
The Children's Palliative Care Lead Nurse can help you make the move between services if you need to.
Some people find it difficult to make decisions on their own, we can offer you help to make choices with your family for support.
You may be the parent or carer of a young person with a life limiting diagnosis who is moving to adult services. You too will find lots of good information on this web page. If you are struggling to access this information, please speak to your Community Nurse.
In this section:
Helplines
Useful information
Other support services
Helplines
- Together for short lives
- General Helpline - Get Support - Together for Short Lives
- Family resources - Resources Archive - Together for Short Lives
Useful information
- Together for short lives - Moving to Adult Services: What to Expect - Together for Short Lives
- Gov.uk
- Citizens Advice - Moving from DLA to PIP - Citizens Advice
Other support services
- Rainbows Hospice for Children and Young People
- Bluebell Wood Children's Hospice
- Our Care - Nottinghamshire Hospice - Palliative and End of Life Care (nottshospice.org)
- Pathfinders - Specialist and Complex Care (pathfinders-care.co.uk)
- End of life care in Derby and Nottingham (treetopshospice.org.uk)
- Butterfly Service | Barnardo's (barnardos.org.uk)
- Rainbow Parent Carer forum (Nottingham and Nottinghamshire)
- Information about supporting young people with life limiting illness
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