Involvement

Patients, service users and carers have worked in partnership with us on a range of involvement opportunities across our services to shape improvements and changes.

Over the last year the number of actively involved people (those who are currently engaging with involvement projects) has increased from 80 - 128 and the number of projects they are involved in has increase from 30 to 40. In addition, many patients in our inpatient setting have also contributed to shaping our services.

Below are some of the changes and improvements resulting from this work.

Involvement in Trust and System Partnership

Patients, service users and carers have worked in partnership with us on a range of involvement opportunities across our services to shape improvements and changes.

Below are some of the changes and improvements resulting from this work.

In response to the challenges the Trust face to improve the quality of its services we have been working over the last two months to ensure that patients and carers have a strong voice in our improvements and the Big Improvement Plan. We are developing a Patient, Carer and Community Advisory and Oversight Group which will give advice, insight and ideas as we develop our plans and check we are making progress and that we are listening to and working with patients and carers. We have planned three meetings for people to talk to our Chief Executive, Ifti Majid.

Making Care Personal Together guide

We set up and run an Improving Care Planning Together collaborative group with Involvement Partners to improve how the Trust plans and reviews care together with service users and carers / their significant others. The group has:
Produced a Making Care Personal Together guide with vision, principles, the core elements of a care plan and I and We statements based on what service users and carers told us matters to them Worked with the Learning and Development Department to develop a day of training around personalised care and communication as part of Mental Health inpatient block training.

Vision

People, and those who matter to them, are active partners and experts in their own care. People are at the centre of their care. We ask what matters, listen to what matters and do what matters.

Principles

People, and those who matter to them, can expect:

Proactive and individual conversations focusing on what matters to them, their needs and wider health and wellbeing.
A care plan developed in partnership, based on their strengths, and recording what matters to them, their agreed outcomes and how to achieve them.
A copy of their care plan (if safe), and shared with relevant professionals. Care plans will be clear, in plain English, timely and meet individual information needs and preferences.
All care plans to be central to care, informing what and how care is delivered.
Care plans to be reviewed with them whenever requested, or their needs or situation changes, in line with service agreements.
To be asked how satisfied they are with their care plan, whether they have met the agreed outcomes, and what difference has been made to their health and wellbeing.

The core elements of the care plan

Your care plan should include:

Agreed summary of needs, and what matters to you
Agreed clear and specific actions, goals and outcomes, and who is responsible
How you, and the people who matter to you, will be involved, supported and communicated with
Contact details of your key worker, and who to contact outside of office hours
A summary of your advanced choices (if you have made some)

A care plan should be informed by:

What matters to you, and the people who matter to you
What is happening in your life
A shared understanding of your health and wellbeing needs
A shared understanding of other needs e.g. social, cultural and communication
A shared understanding of your risk and safety needs, including safeguarding, crisis and safety planning
Reasonable adjustments to help you to engage

I and We statements


I want people supporting me to work with me, and give me choices	We will work with you. You are an active partner and expert in your care
I want people to listen to me and hear what I am saying	We will ask what matters, listen to what matters and do what matters
I want people supporting me to have an open-mind, and be flexible	We will focus our conversations on what matters to you
I want to decide how people who matter to me are involved in my care	We will discuss the people that matter to you, and how to involve, support and communicate together
I want care that joins up all of my needs	We will pay attention to your needs and your wider health and wellbeing, and work with relevant other professionals
I want to agree realistic goals together, that I can achieve	We will agree outcomes and how to achieve them together
I want to make future decisions about my care	We will discuss advanced choices with you. You will be at the centre of your care.
I want to update any changes to my information and preferences	We will ensure that your care plan is reviewed whenever requested, or your needs or situation changes
I want to be asked about how satisfied I am with my care plan	We will ask you how satisfied you are with your care plan, and your outcomes
I want my care plan to record what I actually said	We will record your care plan in your own words, where possible
I want my care plan in a format I chose and can access	We will share your care plan in a way that is meaningful to you
I want my care plan to be timely	We will support you to access your care plan in a timely way

You can download our: Making Care Personal Together - Care Planning Guide (PDF Form) (opens in new window)

A group of Involvement Partners has also been working with the Mental Health Transformation Team to co-produce a DIALOG+ Care Plan template for Adult Mental Health that can be used in the Electronic Patient Record.

We have helped facilitated two system collaboratives. We are also supporting the ICB's plans around co-production and engagement.

The Nottingham City Collaborative for Better Mental Health links to the Place Based Partnership Mental Health Programme. It has run several events to shape work around the City's Mental Health programme around mental health and physical health, the cost of living and workplace wellbeing. It is currently working with members of the Race Health Inequality Group to progress the recommendations from the Race Health Inequality Report.

The Nottinghamshire Tackling Loneliness Collaborative (TLC) has continued to grow with the numbers of professionals and those with a lived experience participating through a network of meetings and collaboration events. A wealth of resources has been developed and regular articles from the collaborative appear across the Nottinghamshire system. In 2024-2025 the TLC will be building a website, developing a training offer to local networks and groups around loneliness called Local Connector and running a conference to bring together those working to reduce the impact of loneliness and those with a lived experience across Nottingham and Nottinghamshire.

We hold a weekly Patient Information Group which involves service user and carer volunteers and staff reviewing and producing new information, policies, survey and websites.

This year the group:

Worked with Mid Notts Community Neurological Rehabilitation Team in the development of therapy-based workbooks on Mood and Activity for those a neurological condition
Reviewed and proposed amendments to previously completed leaflets for Waiting Well within our Local Mental Health Teams
Helped develop leaflets for people within Primary Care settings with advice about Mental Health
Reviewed the Trust's Involvement Policy
Advised on the new look website pages for Involvement, Experience and Volunteering

Forensic Services

In Forensic Services we continue to support patient and carer forums across the Care Group The Forensic Patient Involvement and Improvement Group meets monthly and is an opportunity for patients to share their experiences and views, and to show case some of the work and activities they have been involved with. The meeting has included presentations and discussions on patients' complaints, restrictive practice, and the Optimal Care Project.

We have set up a co-development Group with patients at Arnold Lodge to develop information for patients about Blanket Restrictions, this resource will be rolled out to the wider Forensic Group patients to support a shared understanding and approach on blanket restrictions. They are developing a Recovery College course, an animation and a ward-based workbook so that the information is accessible to all.

At Rampton Hospital we have launched a patient intranet, Made Purple, this enables patients to leave feedback and see responses, and access certain websites such as the Trust, CQC websites and Care Opinion. Patients on the Learning Disability wards have been working with staff to develop a presentation about communications that can be used for staff and volunteer induction.
Patients and Carers at Rampton have fed into the discussion about how we can improve and develop the social visits that happen onsite. The patients came up with lots of ideas including being able to meet in outside areas in the hospital, this is now being piloted for some patient and carers. Patient also said they wanted to be able to show their carers their bedroom and areas that they access like the gym, the outside spaces, swimming pool.
At Wathwood Hospital patients have been working with a multidisciplinary team to develop an appropriate and consistent approach for the accessing some forms of adult materials. A group of patients presented to the Forensic Care Group Leadership team an overview of their work and the topics and issues they had worked through to develop an agreed approach.

Mental Health Services

As part of the rapid improvement work in Mental Health Inpatient Services have been working to improve how patients are involved in improving the mental health wards. Alongside colleagues from our AMH and MHSOP inpatient wards, we have updated our ward community meeting agendas and guidance to support patients to raise both the big and small issues that impact upon their stay on our wards. We are also beginning work on a Culture of Care project to work with patients and carers to improve the culture on the wards so they are safe, equitable and therapeutic.

We have worked with colleagues across the trust particularly in CAMHS and CYPS to create a new process and guidance for working with young people around involvement to allow us to increase youth voice across the Trust. Our IEV website now has a section dedicated to young people, and more information for parents and carers.

Young people with experience lived experience of our services across MH and Community Health Care groups have come together to form a Youth Impact Board (YIB). The young people have designed and created all aspects of how YIB will operate and presented to the Executive Team about the work they had been doing and once fully established will report directly to them. We have now recruited a Youth Impact Board Administrator from the team of young people to help us get the board fully up and running to enable them to begin supporting and challenging our services to become more 'youth friendly'.

Community Health

In Community Health Services the Children's Speech and Language Therapy Team worked with the Involvement, Experience and Volunteering and one of our involvement volunteers to increase feedback as part of a service improvement project. Feedback for the service increased and the information has been valuable for their service improvement project. In particular, the feedback from families so far has highlighted that they would like ways to contact the service other than by telephone. The service are now exploring how they can make this happen. They have produced a video about their work:

There has been a variety of engagement and involvement activities within Children and Young People's Service in Community Health, including the development of a hospital visit video which is being co-produced by a young person and an information animation is being developed by the Transitions/Preparing for Adulthood Lead, along with a young person. Regular focus groups have been arranged with each service within CYP and CCYPS so that the services can hear the patient and parent / family perspectives. There is also a Primary School Health magazine being created in partnership with families.

Rate this page or report a problem

branding footer logo