Neurodevelopmental Specialist Service (NeSS)
The Neurodevelopmental Specialist Service (NeSS) brings together our previous adult autism and adult attention deficit hyperactivity disorder (ADHD) services into one combined service.
We provide:
- Diagnostic assessments for autism and ADHD
- Support to understand the conditions
- Short-term support for issues related to autism or ADHD
- Medication to treat ADHD, which will then be managed by your GP
- Advice and signposting to additional support including mental health services if needed
We do not offer support for other mental health issues that can often go alongside autism and ADHD; these should be referred to mental health services.
Update from NeSS prescribing team - ADHD Medication shortage
There is a national shortage of ADHD medication. We are fully aware of the situation which sadly is out of our control.
The Trust is working on a plan to support our patients. This will involve those with lived experience to help us put the best plan in place.
We have been advised to not start any new medication treatments for ADHD at the moment until this is resolved.
We will endeavour to continue with current prescriptions as long as supplies allow. This might mean some dose changes along the way but we will work with GPs and patients to find a temporary solution where possible.
What is autism?
Autism spectrum disorder (ASD) is a lifelong neurodevelopmental condition impacting on two key areas of life:
- Social communication and interaction - difficulty forming social relationships, difficulty making social conversation ('small talk'), difficulty using and understanding social cues (such as eye contact, gesture, turn taking), difficulty taking another person's perspective (known as 'theory of mind').
- Restricted, repetitive patterns of behaviour, interests or activities - difficulty responding to changes or coping with new situations, preferring routine, difficulty planning ahead or predicting what might happen next, engaging in repetitive behaviours (such as finger flicking), having very strong interests.
Many autistic people also experience sensory differences and can feel over (hyper) and under (hypo) stimulated within their environment. This can relate to stimuli such as light, sound, taste, smell, touch, and balance, and can significantly impact on the person's functioning and wellbeing. Around 1% of the UK population is on the autism spectrum, that's around 700,000. Autism cuts across all ages, ability levels, race, sex and gender, and none of these should be a barrier to accessing diagnostic assessment or support.
What is ADHD?
ADHD - Attention deficit hyperactivity disorder is a condition that includes symptoms such as:
- Inattention - difficulty concentrating for very long or finishing a task, disorganised, easily distracted, forgetful, unable to listen when people are talking.
- Hyperactivity - fidgety, unable to sit still, talking excessively, always on the go.
- Impulsivity - acting quickly without thinking about the consequences, interrupting other people, difficulty waiting turn.
Most people can have these sorts of difficulties at times, but for individuals with ADHD, the symptoms are there most of the time and can seriously affect their everyday life.
Around 2.5% of the UK adult population have ADHD.
The impact of living with ADHD can include:
- Difficulties reaching educational potential
- Difficulties sustaining employment
- Stress in personal relationships and friendships
- Offending behaviours
- Substance misuse
- Additional mental health issues
The diagnosis of ADHD
Symptoms similar to ADHD can be very common and can overlap with other difficulties. To meet diagnostic criteria for ADHD, the person:
- Must meet the DSM 5 clinical criteria of inattention and / or hyperactivity-impulsivity
- Have experienced these symptoms during childhood and adult life, across different settings in their life (such as home, school, university, work, with friends and family)
- Experience impairment due to the ADHD symptoms such as impacting on their education, work, family, friendships and relationships, and self-esteem
Accessing our services
Please note: Due to long waiting times and high demand, we are not able to accept requests to expedite or prioritise any assessments. All referrals will be processed in the order in which they arrived at NeSS. This includes referrals for Trust staff.
Referrals into our service
GPs and any health professional from within Nottinghamshire Healthcare NHS Foundation Trust can refer to our service.
We are unable to accept self referrals, referrals from third sector organisations or referrals for residents outside of Nottinghamshire.
Those who may be eligible to use our service include:
- Adults aged 18 years of above with, or suspected of having, autism and/or ADHD and associated impairment
- Adults aged 18 years or above with an ADHD diagnosis who require ADHD medication treatment initiation or review
- Living within Nottingham City or Nottinghamshire County
- Do not have an intellectual disability (these referrals should be made to the Intellectual Disability SPA)
- Do not have an additional mental illness (these referrals should be made to the Locality Mental Health Team)
Contact and find us
The Neurodevelopment Specialist Service is based at Highbury Hospital. Our service operates Monday to Friday, 9am until 5pm (we have no inpatient facilities).
The length of appointments can vary so we try to give some indication of this on your appointment letter. Your letter will say who your appointment is with.
Getting here
Our clinic is at The Glade, on the Highbury Hospital site.
Our address is:
Neurodevelopmental Specialist Service
The Glade
Highbury Hospital
Highbury Road
Nottingham
NG6 9DR
You can find us on Google Maps for specific directions.
Parking
There is free parking on site, although it can be difficult to find a space at busy times. There are disabled parking spaces just outside The Glade.
Public transport
If you are travelling by public transport, you can use Nottingham City Transport buses 68, 68B, 69, and 69A. Get off at the stop Highbury Hospital (stop BU15). If you are travelling by tram, the closest stop is Highbury Vale tram stop. It is 0.5 miles from our building, around an 11 minute walk at an average pace.
Finding us
From the hospital site entrance, follow the path down and around to the right. Pass The Pines building and Options cafe on your right. The Glade is on the left side.
On arrival
You will need to let the person on reception know you have arrived. Please say your name when asked.
We have a main waiting area (pictured below) with free water facilities and toilets available whilst you are waiting for your appointment.
If you prefer a quieter space whilst waiting for your appointment, there is a quiet waiting room just off the main waiting area and a quiet waiting area in the entrance way to the building.
We have wheelchair accessible toilets and baby changing facilities at The Glade.
Your clinician will collect you from the waiting area for your appointment. You will be seen in one of our 6 clinic rooms. The pictures below are examples of our clinic rooms.
Contact us
The service phone line is open 9am - 5pm Monday to Friday. If you are unable to call during these hours please email the service using the address below.
Tel: 0115 956 0893
Email: NeSS@nottshc.nhs.uk
Change or cancel appointment
If you wish to change or cancel an appointment please call the above number during the hours listed. If unable to contact the service please email with your name and the date and time of your appointment.
Service opening hours
Monday to Friday, 9am-5pm
Help in a crisis
If you are in a crisis, please call the Trusts 24 hour a day 7 days a week crisis line on 0808 196 3779.
Useful resources
Autism
- National Autistic Society (the leading national organisation advocating for autistic people) - www.autism.org.uk
- Autistic Nottingham (a local third sector organisation offering support and advocacy services) - www.autisticnottingham.org
- Autistica (a research organisation focused on investigating issues related to autism, such as anxiety and sensory issues) - www.autistica.org.uk
- National Autistic Society Health Passport (a useful tool to help healthcare professionals understand the needs of autistic people during health appointments) - www.autsim.org.uk/advice-and-guidance/topics/physical-health/my-health-passport
- The Sunflower Lanyard scheme (this is an easily obtained, cheap method of communicating to others that you have a hidden disability) - www.hiddendisabilitiesstore.com
ADHD
- AADD UK (a help and support website for adults with ADHD) - www.aadduk.org
- ADDiSS (information and support about ADHD) - www.addiss.co.uk
- The ADHD Foundation (an information and support organisation for people with ADHD and their families) - www.adhdfoundation.org.uk
General
- Nottinghamshire Help Yourself (a directory of organisations in Nottinghamshire providing different types of support) - www.nottshelpyourself.org.uk
- Nottingham City Council - www.nottinghamcity.gov.uk
Information for health professionals
Neurodevelopmental Specialist Service
The Pines, Highbury Hospital
Bulwell
Nottingham
NG6 9DR
Tel: 0115 956 0893
Email: NeSS@nottshc.nhs.uk
How to refer someone to this service
GPs can refer using our referral form available within all practices across the county.
Notts Healthcare staff, please refer to the staff intranet where you can find the full referral criteria and referral form.
What to expect following a referral
All referrals will be reviewed by our clinical team. Once accepted referrals will be acknowledged in writing to the referrer and client. The client will then be sent opt-in pre-screening questionnaires to complete and return. If these are not returned the referral will not be processed. Opt-in questionnaires will be reviewed to consider suitability for assessment. If so, the client will then be offered a screening assessment with a clinician. Following screening a decision will then be made with the client about further assessment and / or support within the service.
Service lead
Rebecca Bryan
Email: rebecca.bryan@nottshc.nhs.uk